Parents of twins with Niemann-Pick find a treatment

Hugh and Chris Hempel have battled long and hard for treatment for their twin daughters’ rare genetic condition.

Head of the Herd: Michele Sloan, Foundation to Fight H-abc

Parents of baby with 'childhood Alzheimer's' raise funds for

Update: Twins who were face of controversial rare disease

Push to spur more drugs for deadly rare diseases

Cureus Niemann-Pick Disease Type A: A Rare Disease With a Fatal

Twins with rare genetic disorder could hold clue to cure for Ebola

Meet the Arizona families and their children battling Niemann-Pick

Their children are dying, and these families are racing to fund

Meet Parker and Woodrow, two AZ children with a rare disease

The legacy of finding a cure for Reno twins Addi and Cassie Hempel

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Parents of kids with Niemann Pick C advocate for adrabetadex

Families plead with FDA for drug to treat Niemann-Pick Disease

Parents of twins with 'children's Alzheimer's' find hope in sugar