Niemann-Pick - EURORDIS

Viver um dia de cada vez Era o dia de aniversário de Alberto Vargas quando recebeu notícias concretas de que a sua filha Valéria tinha a doença de Niemann-Pick. A sua filha do meio, Fernanda, já tinha morrido desta doença degenerativa incurável. «Fiquei destroçado. A minha mulher foi para o quarto e chorou durante quatro […]

Advocacy in rare disease: Surveying the landscape, Science

Concerto di Natale Niemann Pick

NPSuisse - Schweizerische Niemann Pick Vereinigung

Rare diseases in the arts - EURORDIS

Niemann Pick i Norge

Yann Le Cam on LinkedIn: Podcast with Yann Le Cam - Chief Executive Officer of EURORDIS

Association Française Niemann Pick

NORD and the Galactosemia Foundation Jointly Publish First “Voice of the Patient” Report to Help Inform the FDA and Researchers - National Organization for Rare Disorders

Introducing a New Report on Latinos and Rare Diseases - National Organization for Rare Disorders

Niemann-Pick - EURORDIS

Justin Hopkin - Board Member - Uplifting Athletes

EURORDIS Elects New Board of Directors - EURORDIS

Niemann-Pick - EURORDIS

Think Again. Think NP-C